ST. LOUIS, Mo. (KMOX) – Imagine being in so much pain — all over your body — you couldn’t stand to be touched.
That’s daily life for an 11-year-old St. Louis girl.
“Sometimes it’s aching. Sometimes it’s burning. Sometimes it’s shooting,” explains Kai Radford.
It all started last summer during a day at Forest Park. Kai and her family were riding their bikes. She took a hard fall.
“You know we, of course, thought she had broken her wrist,” says mom Karla.
Turns out, it wasn’t a break, but wasn’t improving either.
“As the weeks progressed and it was not getting better and we continuously went back to the hospital, went back to doctors to try and figure out what was wrong, the pain began to climb,” says Karla Radford.
They went from one specialist to the next as the pain spread up Kai’s arm, into her neck, down her back, even into her legs. As doctors ruled out other ailments, they finally decided she’s suffering from an incredibly rare disorder called Reflex Sympathetic Dystrophy. Any original injury’s gone, but her body’s telling her it should still feel pain.
Karla credits the St. Louis pediatric specialty hospital Ranken Jordan for going above and beyond to try and put together a therapy program for Kai, while she appeals repeat denials from her insurance company for coverage of therapy in a specialized program out-of-state.
The Radford’s have received an outpouring of financial support for Kai’s treatment. The campaign continues through the 27th on www.GiveForward.com\helpKai.
Hear more about Kai’s fight in this special report from KMOX’s Megan Lynch.
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